the real inspirations

I'm not a super woman.

Had to put that out there because often I get told that I am an inspiring person. I'm just a woman trying to deal with a bad situation in the only way I know how.

I have bad days. I don't go on my social media and post all about my aches and pains but they are there. Even as I sit here now typing, I am debating which anti-nausea med will work the best today. I tried to get a little bit done in the kitchen but after about 15 minutes I had to sit down because I was starting to feel woozy. I did manage to wash the dishes and they are air drying now.

This shit isn't easy. I have to go day by day and sometimes hour by hour to see how I feel and what I

can actually accomplish that day. Some days are very hard and I cannot do anything. I sleep the day away and hope the next day is better. Other times I am able to do a little housework or go to the store where I use the motorized carts because walking through a big store is too much for me. I get dizzy easily and need to sit because I am constantly fighting against low hemoglobin levels.

When I am having to be stuck by needles over and over because my veins are giving up on me, sometimes I want to scream.
There are many things that I don't complain about because I don't see the point. That doesn't make me better or worse than anyone else. There are a lot of people out there fighting their own battles with cancer, depression, Lyme disease, MS, CP or any number of things. We each have stuff going on in our lives that is a battle to each of us. Some people are not as public about it and that is okay.

I have chosen to share with you a part of my battle with cancer but I assure you, I am not inspiring. My personality dictates my choices and I've always been a fighter who doesn't let things defeat my spirit. There have been other things in my life that I have gone through just as, if not more, difficult as this and I am sure I will see more challenges in the future. Those too, I'm sure, I will face with the same stubborn determination that I have every other obstacle because that is who I am.

The real inspirations are my kids and you all. My children (ages 19,16 and 8) are a constant source of my fight and determination. No matter what a bad or good day I am having, it is them that keeps pushing me forward mentally. The desire to see them grow and become the amazing adults I know is inside them. Also, your support.... all of you who have read my blog, messaged me kind words, given to my fundraiser and generally shown me love and caring through this whole thing. With out you all, I would be much lonelier and scared but you all have been my rocks! You and my kids inspire me every day to keep moving forward and taking things as they come.

So while I cannot tell you what to do and think, I ask that you look to yourselves for inspiration because you inspire me. I'm just a woman trying to get through a rough time in her life the only way she knows how.

Things A Cancer Patient Wants Friends and Family To Know

I thought it was time for me to write a list of things a cancer patient might want their friends and family to know  about their needs.

1. Often we are cold or hot, our bodies change often, please stop complaining if you live with us that

Electric Blanket

 it is too warm or cold for you. Our bodies are under a great deal of stress, please don't put us under mental stress by complaining. Just put on a sweater if you are cold or open a window in your bedroom if you are hot.

2. We do not know how we will feel day to day or even hour to hour, so if we make plans they should be considered tentative at best. Don't tell kids that we will be doing something because younger children have a harder time with plans that have to change the day of or before.

3. People say, "Let us know if there is anything I/we can do for you?". Generally we will say Thank You but never really ask for anything. It is not that we DON'T need something but we don't know how to ask with out feeling awkward. Better if you just do something, we will appreciate both what you do and not making us ask.  HERE is a link to a list of ideas for things that you could purchase for your friend or family member. Other helpful things are gift cards for gas, restaurants, Amazon, Netflix or a store card.

Don't ask, just do because if you wait for us to say something, you might be waiting a good long while! We really will appreciate the help, it is just hard sometimes to ask for it, especially for those who usually are the ones taking care of everyone else.

4. Unless you are someone who spends a lot of time with us and knows our culinary preferences and our family's tastes, don't send food. During cancer treatment, our taste buds can change and make everything horrible tasting or maybe even go away. We won't want to turn down the offer of food because we appreciate it, even if it isn't something we or the family would particularly like. I'm sure you would rather food get eaten, so your best bet is to maybe ask what our favorite snacks or beverage are and send those instead. Also, snacks are something we can take with us for those hours at chemo.

Spaghetti with Red Sauce

5. More about food... usually the doctors we are working with will give us a good general guideline of what they want us to focus on with our diet.  Some days, during treatment, it is all we can do to sip a beverage and maybe get down a few bites. Those few bites might be a corn dog, a lettuce wrap, some chips, a few veggies or whatever tastes okay at that moment. PLEASE, PLEASE I beg of you to not criticize or offer diet advice. We are getting dietary advice from god and everyone. We love the fact that you care enough to offer the advice but we get so much of it, that it becomes overwhelming.

6. Don't stop sharing your life with us. If you are someone who would talk to us about your crappy day before we got cancer, then tell us about it. If you are sick, feel free to share. Just because we have cancer and going through treatment, doesn't mean that your issues are not important to us. Also, listening to someone about their horrible boss or bratty kid or whatever will give us a mental break from our own problems. Much the same reason people watch drama filled talk shows.

Okay, that is all for now... part 2 might come later. If you are a cancer patient or survivor and have any suggestions for things you would love friends and family to know, feel free to email me (brandy) AT energysheep DOT com.

And The Band Played On

It has been a few months since I have written here and I would like to explain. My fight last year with cancer didn't end. It was discovered via CT Scan that I had cancer tumors in my abdominal wall. I had a biopsy to confirm and then surgery to remove the tumors. Six weeks later, after healing, I went to visit my chemo doctor. He said that my CR125 test was very high and he wanted to do a PET Scan. The PET came back and they found tumors in my liver.

This was quite shocking to me and I must admit, rather upsetting.  I asked the doctor how long I have left. He could not give me a time table but said that with remission he has seen people live 10 years or longer and in no way was he saying that I only have 6 months left to live.

The plan for now is to do 3 rounds of chemo and then another PET Scan to see how the cancer is reacting. Obviously, we are hoping it will go into remission and I am keeping a positive attitude that is exactly what will happen and I will have many years left. Of course I have taken time to process the information and even cry to get to that positive attitude but I decided that to keep crying would do no one any good.

I do however have a practical side and am working on putting my affairs in order. I have children and am a single mother, so I have to make sure they will be taken care of in the event that this goes sideways.  I plan to consult with a lawyer in my state to see how much say I will be allowed to have in my will about where and how my children are to be raised. If you are a single parent with a questionable father or mother of your children, it is very important that you know what your rights are and your children's rights. States each have different custody laws and different ages where they will take what the kids want into consideration. If you are in a similar situation, please consult with an attorney.

My children are what I live and breath for and while I take care of the practical side, I also want to spend time with them. I want to build memories for them to look back on and know they were loved very much. One day I won't be here and the memories of me is what they will have to hold on to. I am not worried about buying them things... toys break, interests change, children grow. I want to make gingerbread men, take them to events, string popcorn for the Christmas tree, play games and snuggle up on the couch with popcorn and a movie.

Those are the important things and what my focus is on besides fighting cancer. This is my life and no matter how long that life is, I have my priorities together and know the person I am. Cancer doesn't change who I am, it will come or it will go but the tune of my life goes on.